PRESIDENT: Ian A. Thompson

P.O. Box 3598. Halifax, Nova Scotia. CANADA B3J 3J2

Fax: (902)422-2368

E-Mail: ithomps@fox.nstn.ca

 

VICE-PRESIDENT: Enrique Silver

Marne 3389. 11600 Montevideo. URUGUAY

Tel/Fax: 598 2 286849

E-Mail:esilver@netgate.com.uy

 

VICE-PRESIDENT: Inge-Britt Lundin

Upplandsgatan 49. 11328 Stockholm - Sweden

H Tel: 46.8.320724 / 54247332

O Tel: 46.8.7373309

O Fax: 46.8.7374188

Assoc. Fax: 46.18.127074

E-Mail:inge-britt.lundin@lk.sl.se

 

TREASURER: John Edkins

Birchwood cottage. 32 Mizen Way. Cobham, Surrey. KT11 2RG - UK

Tel: + 44 1932 863017

Fax:+ 44 1932 860953

E-Mail:john.edkins@silversands.co.uk

 

SECRETARY: Aisha Ramos

Av. Campanar 106 - 3º - 6ª. 46015 Valencia - SPAIN

Tel: 34.6.3461414

Fax: 34.6.3494047

E-Mail: fq@vlc.servicom.es

SCIENTIFIC/MEDICAL ADVISORY COUNCIL

CHAIRMAN: Prof. A. George F. Davidson

Children's Hospital. Room 2C66, 4480 Oak St. Vancouver, BC. CANADA V6H 3V4

Tel: (604)875-2142

Fax: (604)875-2349

E-Mail: gdavidson@wpog.childhosp.bc.ca

 

VICE-CHAIRMAN: Prof. Manfred Gotz

Dept. of Paediatrics. Wilhelminenspital der Stadt Wien. Montleartstrabe 37

1171 Vienna, AUSTRIA

Tel: 43.1.49150.2238

Fax:43.1.49150.2809

 

SECRETARY: Prof. Niels Hoiby

Dpt.of Clinical Microbiology. Rigshospitalet, afsnit 9301. Juliane Maries Vej 22

DK-2100 Copenhagen - DENMARK

Tel: 45.35. 457788

Fax:45.35. 456412

Dr. Robert Beall, Ph.D

Cystic Fibrosis Foundation. 6931 Arlington Road. BETHESDA, MD 20814 USA

Tel: (301)951-4422

Fax:(301)951-637

Dr. Peter Bye *

Royal Prince Alfred Hospital. CF Adult Clinic, Page Chest Pavillion .

Missenden Road. CAMPERDOWN NSW 2050, Australia

TEL: (61)2 515 7427

FAX:(61)2 550 5865

E-Mail:peter@blackbum.med.usyd.edu.au

Dr. Stella Cabeza

Costa Rica 2061. MONTEVIDEO, CP 11500, Uruguay

TEL: (598) 2 603842 - 6003842

FAX:(598) 2 286849 - 2086849

E-Mail:smcabeza@chasque.apc.org.uy

Prof. Gerd Doring

University of Auckland. Private Bag. Hyegene Institute

Wilhelmstr.31. 72074 TUBINGEN, Germany

TEL:(49)7071 292069

FAX:(49)7071 293011

E-Mail:gerd.doering@uni-tuebingen.de

Dr. Carlos Macri

Lafinur 3324 piso 8. 1425 BUENOS AIRES, Argentina

TEL: (54 1) 802 40 15

FAX:(54 1) 801 28 23

E-Mail:cnmacri@pccp.com.ar

E-Mail:carlos@cmacri.ba.ar

Prof. Philippe Roussel

Unité Inserm U377

16, Place de Verdun .59045 LILLE, Cedex, France

TEL: (33) 20 29 88 54

FAX:(33) 20 53 85 62

E-Mail:roussel@inserm.lille.fr

Prof. Birgitta Strandvik

Pediatric Clinic, University Hospital

416 85 GOTEBERG, Sweden

Tel: 46.31.37.4000 ext.4723

Fax:46.31.21.7023

Dr. Michal Witt, M.D., Ph.D.

Institute of Human Genetics

Strzeszynska 32. 60-479 POZNAN, Poland

TEL:(48-61)233-187;233-011

FAX:(48-61)233-235;233-671

E-Mail:wittmich@man.poznan.pl

 

IMMEDIATE PAST CHAIRMAN

& WHO MEDICAL LIAISON

Prof. John Dodge

Dept. of Child Health Institute of Clinical Science

Grosvenor Road, Belfast, BT12 6BJ. NORTHERN IRELAND

Fax: 44.1.232-236455

 

IPG/CF REPRESENTATIVE

Ms.Carien Beurkens *

Afd. Fysische Therapue,

St. Radboud Ziekenhuis. Geert Grooteplein 16,6550 HB Nijmegen. THE NETHERLANDS

TEL:(31)24-361 38 12

FAX:(31)24-354 05 76

E-Mail:c.beurskens@fysioth.azn.nl

Dr. Michelle Ramsay PhD *

Dept. Of Human Genetics. S.A. Institute for Medical Research

Hospital Street, PO Box 1038. JOHANNESBURG 2000, South Africa

Fax: 01.27.11.725.2319

E-Mail :micheler@mail.saimr.wits.ac.za

Dr. Alison Wesley *

Dept. Of Paediatrics. University of Auckland. Private Bag.

AUCKLAND, New Zealand

Tel: 9.379.9440

Fax: 9.307.2895

* will alternate yearly

 

IMMEDIATE PAST PRESIDENT

Martin Weibel

Fliederweg 45. 3138 Uetendorf, SWITZERLAND

H Tel: 41.33.45.25.15

O Tel: 41.31.324.11.70

Fax: 41.33.45.25.79

W.H.O. LIAISON

Mrs. Liliane Heidet

124 chemin de la Montagne. CH-1224 CHENE-BOUGUERIES. Switzerland

Tel: 22/348 94 52

E-Mail: richsteink@who.ch

 

IACFA - CHAIRPERSON & EDITOR NEWSLETTER

Mrs Barbara Palys

82 Ayer Road. HARVARD, MA 01451 USA

Tel/Fax: 508-456-8387

E-Mail: palys@tiac.net

 

SECRETARY

Ms Lisa Hoyer

Davidgasse 32/14. A-1100 VIENNA.AUSTRIA

Tel/Fax: 43.1.604.8802

Fax: 43.1.332.6376 (CF-Assoc.)

E-Mail: Compuserve 101321,2516

ARGENTINA

Mrs Marta B. S. de Picasso

Assoc. Argentina de Lucha contra la Enfermedad Fibroquistica del Pancreas

Pueyrredon 1895-1ºB. 1119 BUENOS AIRES, Argentina

Tel: 54.1.806-5585

Fax:54.1.806-7633

E-Mail:fipanbsas@mail.rochp.com.ar

AUSTRALIA

Mrs Helen Griffiths, President ACFA

Macquarie Hospital Campus

PO Box 254. NORTH RYDE NSW, 2113, Australia

Tel: 61.2.878-5250

Fax: 61.2.878-5058

AUSTRIA

Mrs Irmgard Kellner

Austrian CF Association

Himmelreichweg,8 A-6112 Wattens-AUSTRIA

TEL/FAX: 43.5224.56519

E-Mail:cf.austria@tirol.com

BELGIUM

Madame Annick Maréchal

Assoc. Belge de Lutte contre la Mucoviscidose (ABLM)

Ave Joseph Borlé 12. 1160 BRUSSELS, Belgium

Tel: 32.2.675.57.69

Fax: 32.2.675.58.99

BRAZIL

Mr. Sergio Sampaio

ABRAM

C.P. 19542. 80251-970 CURITIBA-PR, Brazil

Tel: 55.41.278.9417

Fax: 55.41.224.0897

BULGARIA

Cystic Fibrosis Assoc. of Bulgaria

Research Institute of Pediatrics

Medical Academy D. Nesterov str.II

1606 SOFIA, Bulgaria

Tel: 359.51.70.85

CANADA

Mrs Cathleen Morrison

Cdn Cystic Fibrosis Foundation

Suite 601, 2221 Yonge Street. TORONTO, ON Canada M4S 2B4

Tel: 1.416.485-9149

Fax: 1.416.485-0960

E-mail:cmorrison@ccff.ca

CHILE

Mr. Patricio Lira

Corp. Para la Fibrosis Quística del Pancreas

La Canada 6505 (i)

La Reina

Santiago - Chile

COSTA RICA

Asociacion Costarricense de FQ

Mrs Cecilia Zuniga

Apartado 357-1002

Paseo de Los Estudiantes. SAN JOSE, Costa Rica C.A.

Tel: 506.222-0122 ext.414

Fax: 506.223-3740 or 506.223-1609

CUBA

Dr Manuel Rojo Concepcion

Comision Cubana de F.Q.

Hospital Pediatrico JM Marquez

Ave. 31 esq.a 76, cp 11400. Municipio Marianao. CIUDAD HABANA, Cuba

Tel/Fax: 53.7.330-145

E-Mail: rojo@infomed.sld.cu

CZECH REPUBLIC

Mrs Helene Holubova

Bitovska 1226/7. 140 00 PRAHA 4. Czech Republic

Tel: 42.242.1381

DENMARK

Mrs Hanne Wendel Tybkjaer

Danish C.F. Association

Hyrdebakken 246. DK-8800 VIBORG, Denmark

Tel: 45.8667 4422

Fax: 45.8667 6666

E-Mail: INFO@cf-dk.org

ECUADOR

Sra. Isabel Franco de Bermeo

Ciudadela Alborada Decima Etapa

Manzana304 Villa Diez

GUAYAQUIL, Ecuador

Tel: 593.4.274061 / 271823

Fax: 593.4.237-979

E-Mail: nguzman@ecua.net.ec

EL SALVADOR

Fundacion para la FQ (FIQES)

Cond. Ud. 301

Urb. La Esperanza

SAN SALVADOR, El Salvador

Tel: 503.225-3839

Fax:503.225-9639 (9:00am to 7:00pm)

FRANCE

Monsieur Hervé Garrault

AFLM

76,rue Bobillot.75013 PARIS, France

Tel: 33.1.40.78.91.91

Fax: 33.1.45.80.86.44

E-Mail: AFLM@EASYNET.FR

GERMANY

Mr Michael Hartje

German CF Association (Mukoviszidose)

Bendenweg 101. D-53121 BONN. Germany

Tel: 49.228.98.78.00

Fax: 49.228.98.78.077

E-Mail: mukoviscidose@t-online.de

GREECE

Ms Haroula Papavassilopoulou

Hellenic C.F. Assoc.

Parashou & Papathimiou Str. Nº 6. Athens 11475 - Greece

Tel. 64.31.883

Fax: 51.46.429 (Int.Code 0030.1)

HUNGARY

Dr Klara Holics

President, Cf Foundation

H-1124 Burok-u 15. BUDAPEST, Hungary

Tel: 36.1.1567-039

Fax: 36.1.1330-167

ICELAND

Dr Hordur Bergsteinsson

CF Association of Iceland

Barnaspitali Hringsins

Landspitalinn v/Baronsstig. 101 REYJAVIK, Iceland

Tel: 354.1 601000

Fax: 354.1 601519

IRELAND

Mr Larry Warren

CF Association of Ireland, CF House

24 Lower Rathmines Road. DUBLIN 6, Ireland

Tel: 353-1-496 2433

Fax: 353-1-496 2201

ISRAEL

Mrs Mira Gal, Israel CF Association

5 Shderot Haycled. Ramat Gan, Israel 52444

Tel: 972 3.670.2323

Fax:972 3.670.2324

E-Mail Ami Kolumbus : amik@mail.iol.co.il

ITALY

Vittoriano Faganelli

CF Centre

c/o Ospedale Civile Maggiore Borgo Trento

Piazzali A. Stefani 1. 37126 VERONA, Italy

Tel: 39.45.8344060

Fax:39.45.8348425

Mrs. Inge Saxon-Mills

Vice-President

Largo Olgiata 15, Isola 31/B

00123 ROME, Italy

Tel: 39.6.30889168 - 30889269

Fax: 39.6.30884132

LITHUANIA

Mrs Rima Budreckiené

President, LCFA

Sevcenkos 9-4. VILNIUS 2009, Lithuania

Tel: 370.2.63-85-63

Fax: 370.2.23-73-11

MEXICO

Dr Jose Luis Lezana

Asociacion Mexicana de FQ,,AC

Altavista # 21 CP.01000. Col. SAN ANGEL, Mexico D.F.

Tel: 52.5. 616-2269

Fax: 52.5. 550-9625

NETHERLANDS

Mr Herman J. Weggen

Dutch CF Foundation

Lt.Gen. van Heutszlaan 6. 3743 JN BAARN, Netherlands

Tel: 31. 35 5418 408

Fax: 31. 35 5421 616

E-Mail:weggen@treff.nl

NEW ZEALAND

Mr Bruce Dunstan

CF Association of New Zealand

187 Cashel St, PO Box 22776. CHRISTCHURCH 1, New Zealand

Tel: 64.3.3651-122

Fax: 64.3.3668-535

NORWAY

Norsk Forening For CF (NFCF)

Postboks 114, Kjelsas. 0411 OSLO 4, Norway

Tel: 47.22.235050

Fax: 47.22.235700

PANAMA

Dr. Gherson Cukier A.

Neumologo Pediatra

Apdo. 662

David, Chiriqui

REP. DE PANAMA

Tel: 507.75.7680 or 74.0128, ext.66

Fax: 507.74.0144 or 75.5908

POLAND

Mr. Bogdan Kusmievczyk

Polish Society Against CF

32-510 Jaworznol. ul. CHOPINA 61, Poland

Tel: 48.187.760-60 w 331

Fax: 48.187.760-69

Fax: 48.61.233235

PORTUGAL

Joaquim Nunes Robalinho

A.P.F.Q.

Apartado 5275

4021 PORTO Codex, Portugal

E-Mail:apfq@mail.telepac.pt

ROMANIA

Professor Ioan Popa

Romanian CF Association

Str. Gh. Doja nr.14. 1900 TIMISOARA, Romania

Tel/Fax: 40.56.194.529

SOUTH AFRICA

Mr. Alain Woolf

National CF Association

25 Hope Rd. ORANGE GROVE 2192, South Africa

Tel: 27.11.483.1826

Tel: 27.11.4728.1474

Fax: 27.11.728.4096

SPAIN

Mr. Vicente Costa Seglar

Federación Española contra la Fibrosis Quística

Av. Campanar - 106 - 3º - 6ª. 46015 VALENCIA - Spain

Tel: 34.6.3461414

Fax:34.6.3494047

E-Mail: fq@vlc.servicom.es

SWEDEN

Swedish CF Association

Box 1827 . S-751 48 UPPSALA, Sweden

TEL;(46)18.151.622

Fax: (46)18.127.074

E-Mail:hansson@medmod.medkem.gu.se

SWITZERLAND

Mrs. Regula Salm-Muller

Schweizerische Gesellschaft

fur Cystische Fibrose (Mucoviscidose)

Bellevuestrasse 166. 3095 Spiegel/Bern Switzerland

Tel: 41. 31.972.28.28

Fax: 41.31.972.51.92

TURKEY

Dr. Ayhan Goçmen

Prof. of Pediatrics

CF & Pediatric Respiratory Disease Assoc.

Hacettepe University

ANKARA 06100, Turkey

Tel: 90.312.310-3545

Fax: 90.312.310-6262

UNITED KINGDOM

Cystic Fibrosis Research Trust

5 Blyth Rd Bromley. Kent BR1 3RS England U.K.

Tel: 44. 1-81 464-7211

Fax: 44. 1-81 313-0472

UNITED STATES

Robert J. Beall, Ph. D.

Cystic Fibrosis Foundation

6931 Arlington Road. Bethesda MD 20814 U.S.A.

Tel: 1.301. 951-4422

Fax: 1.301. 951-6378

URUGUAY

Mr. Enrique Silver

Asociation de Fibrosis

Quistica del Uruguay AFQU

Marne 3389. 11600 Montevideo, URUGUAY

Tel/Fax: 598-2-286-849

E-Mail: esilver@netgate.comintur.com.uy

VENEZUELA

Sra. Julieta Conde Di Mase

F.Q. de Venezuela A C

Av. José Feliz Sosa

Torre Britanica, piso 5, Oficina C. Altamira sur CARACAS. Venezuela

Tel: 58.2.263.02.97 or 58.2.267.13.19

Fax: 58.2.265.53.54

AZERBAIJAN REPUBLIC

Dr. Kamal Gajiyev

Mir Dshalala 35-53 9ª Mikrorayon. BAKU 370134, Azerbaijan Rep.

Tel: 93-19-07

BAHRAIN

Dr. Fadheela Al-Mahroos

Consultant Paediatrician

P.O. Box 11602. MANAMA, State of Bahrain

Tel: 973.693.350

Fax: 973.393.871

DOMINICAN REPUBLIC

Dr. Jose Enrique Gonzalez Holguín

Centro Médico Universidad Central del Este

Unidad de Gastroenterolorogía y Videoendoscopia Digestiva

C/ Pedro Henriquez Ureña, esq. Máximo Gomez. SANTO DOMINGO, Dominican Republic

Fax: 809/6828098

EGYPT

Prof. Ekram Abdel-Salam

Cairo University

11 Falaki Square. CAIRO 11111, Egypt

Tel: 202 365-5655 or 393-3777

Fax: 202.361-2678

ESTONIA

Dr. Tiina Klaassen

Estonian C.F. Society (ECFC)

23 Riia St.. TARTU, EE2400, Estonia

Tel: 372.7.420 210

Fax: 372.7.420 286

FINLAND

Ms. Leena Jokinen

Hoikan Kuntoutuskeskus

38100 KARKKU, Finland

Tel: 358.32.512-15

Fax: 358.32.512-1220

GUATEMALA

Dr. Jorge Palacios R.

6a Av. 3-56 Zona 10. GUATEMALA CITY, CP01010

Central América

Fax: 502.2.318975

JORDAN

Dr. M. Rawashdeh, MD, Msc, MRCP

Consultant in Pediatric Gastroenterology & Nutrition

Associate Professor of Pediatrics

Jordan University of Science & Technology

IRBID - Jordan

Tel: 295111

Fax: 295123

LUXEMBOURG

Association Luxembourgeoise de Lutte contre la Mucoviscidose-ALLM

Marc Rosenfeld

Chairman. B.P. 212. L-3403 Dudelange

TEL:352 52 0520

FAX:352 52 5494

E-Mail:mrosenf@pt.lu

MACEDONIA

Dr. Stojka Naceva Fustik

Faculty of Medicine

The Pediatric Clinic

ul. Vodnjanska 17. 9100 SKOPJE, Macedonia

Tel: 389.91.252652 (H)

Fax: 389.91.364262

Tel/Fax: 389.91.229156 (Work)

QATAR

Dr. Ghalia Al Thani

Sr. Registrar, Pediatric G.I.

Department of Paediatrics

Hamad Medical Corporation

P.O. Box 3050. DOHA, Qatar

Tel: 974.492-239

RUSSIA

Dr. Tatiana E. Gembitzkaya

State Research Centre for Pulmonology

Roentgen st. 12, 197089. ST. PETERSBURG, Russia

Tel: 7.812.238-48-31

Fax: 7.812.233-8205 & 7.812.315-1701

Fax: 7.812.234.9046

SAUDI ARABIA

Dr. Hisham Nazer, FRCP

Prof. of Pediatrics

King Faisal Research Centre

P.O. Box 3354. RIYADH 11211, Saudi Arabia

Tel: 966-1-464-7272 ext. 7761/1942

Fax: 966-1-442-4493

SLOVAK REPUBLIC

Katarína Stêpánková

Slovak CF Club

Park Angelinum 2. 040 01 KOSICE. Slovak Republic

Tel/Fax: + 42 95 633 80 31

Ms. Diane Rogers

Cystic Fibrosis Unit, Dept. of Child Health

University Hospital of Wales, Heath Park

Cardiff, CF4 4XW - UK

Tel: + 44 1222 74 35 30 (O)

Tel: + 44 1443 22 91 07 (H)

Fax: + 44 1222 74 35 87 (O)

E-Mail: RogersD@cardiff.ac.uk